Hope all goes well for you, Milly.

... but isn't it marvellous that they can do something about it ... ?

Thanks everyone.  Just got back and should be ok till the next batch on 22nd December which will see me over Christmas and maybe my birthday in February. 

h-h it is indeed marvellous that they can do something about it!  I wouldn't have been able to look after the child otherwise.  When I worked full-time, I had a very understanding boss, who used to let me make up the time I had off because these injections weren't available at that time and I get attacks very frequently.

I go to the maxillo-facial unit at Victoria Hospital and have, would you believe, Botox injections in my head.  Not in my face - so unfortunately there is no cosmetic advantage.     I have 5 of them in the top of my head, 5 down the back, 5 down both sides of my neck and two lots in the side. I've been going for two years now.  Before that I'd reached the point where my GP used to come out (but only after I'd been flat out for 3 days) and give me an injection of diamorphine.  This was obviously not a good thing as morphine is addictive, so I was very pleased to read an article in our local paper about this "new treatment".  The GP wouldn't refer me at first because he said he couldn't see how it could possibly work.  In the end I managed to persuade him and I've been going along ever since.

I was amazed at what they use Botox for!  Parkinsons disease - dystonia - all sorts.  Migraine too.  But you have to be very severe to get it on the NHS.  You can pay to have it done privately at the Fylde Coast Hospital with the same surgeon.  If anyone would like the name of this man for a consultation, then pm me.

I've found that a course of these, plus my Imigran, keeps it under control.  It doesn't stop them happening, but they are less severe and I have my life back.

All in all, a blessing. 

Good for then Milly. I am glad tht some treatments do work!! Botox as well, my goodness!

Blimey! That sounds gruesome! But if it works it must be well worth it. Excellent, Milly. 

I have another friend who goes for some sort of head tremor that she suffers from.  It isn't Parkinson's but I can't remember what she said it was.  It stops it completely!  Amazing stuff.

As far as wincing when the needle goes in ( you wuss!)  , trust me - although it does sting a bit, it's one hell of a lot better than suffering the alternative!!!

Grrr! I hate the bureaucracy of the NHS!  The teenager was referred a couple of weeks ago regarding these darn lymph nodes on his neck and we haven't heard a thing.  I therefore assumed his appointment would have gone to his old address., even though he did tell the surgery his new one.

In the last 20 minutes I have had to :-

1.  Ring the GP to ask if he has actually been referred.  Yes he has but the address hasn't been altered.  They gave me the referral appointment centre's number to ring and advise them.

2.  I rang the above number to be told that the appointment has been sent to the other address. There won't be anyone there at the moment to forward it to us or to open the door if I go to collect it.   I told them the new address but they then said I have to ring the local hospital for them to update their records with the new address otherwise they can't tell me when it is for etc.  I did manage to prise out of the twit that it is on the 29th September at 4.30 with somebody, somewhere.....

3.  I rang the local hospital to give them the new address but they won't let me change it because he's 18.  He's at work and doesn't have his mobile with him.  They finish at 5.30 and he finishes at 6.   

I do realise there are privacy laws etc., but surely commonsense should come into it somewhere?  I'm all for ethics but every case is individual.  This is urgent for god's sake! 

I rang his boss and asked if he could use his phone as it is an urgent matter - so that he can tell them what I could easily have told them.

No wonder I get headaches!